Seminars in Thoracic and Cardiovascular Surgery: Pediatric Cardiac Surgery Annual
Volume 13, Issue 1 , Pages 66-70 , 2010

Uses and Limitations of Registry and Academic Databases

Presented at AATS Annual Meeting – Boston, 2009.

  • William G. Williams

      Affiliations

    • Corresponding Author InformationAddress correspondence to William G. Williams, Hospital for Sick Children, 555 University Ave., Room 1525, M5G 1X8 Toronto, Ontario, Canada

References 

  1. Williams WG, McCrindle BW. Practical experience with databases for congenital heart disease: a registry vs. an academic database. Semin Thorac Cardiovasc Surg Pediatr Card Surg Annu. 2002;5:132–142
  2. Stark JF, Stark J. Databases for congenital heart disease: a beginner's guide. Semin Thorac Cardiovasc Surg Pediatr Card Surg Annu. 2000;3:110–116
  3. Lenat D. Cycorp. http://www.cyc.com/cyc/company/lenat
  4. Welke KF, Diggs BS, Karamlou T. Databases for assessing outcomes of treatment of patients with congenital heart disease - a comparison of administrative and clinical data. Cardiol Young. 2008;18(suppl 2):137–144
  5. Shahian DM, Blackstone EH, Edwards FH, et al. Report from the STS workforce on evidence-based surgery: Cardiac surgery risk models: a position article. Ann Thorac Surg. 2004;78:1868–1877
  6. Gallivan S, Stark J, Pagel C, et al. Dead reckoning: can we trust estimates of mortality rates in clinical databases?. Eur J Cardiothorac Surg. 2008;33:334–340
  7. Gibbs J, Monro JL, Cunningham D, et al. Survival after surgery of therapeutic catheterization for congenital heart disease in children in the UK: analysis of the central cardiac audit for 2000-1. BMJ. 2004;328:611–615
  8. Treasure T. Congenital heart disease: monitoring intervention after Bristol. BMJ. 2004;328:594–595
  9. Jacobs JP, Mavroudis C, Jacobs ML, et al. What is operative mortality? Defining death in a surgical registry database: a report of the STS Congenital Database Taskforce and the Joint EACTS-STS Congenital Database Committee. Ann Thorac Surg. 2006;81:1937–1941
  10. Williams W. Defining operative mortality: it should be easy, but is it?. Ann Thorac Surg. 2006;81:1557–1560
  11. Jenkins KJ, Gauvreau K, Newburger JW, et al. Consensus-based method for risk adjustment for surgery for congenital heart disease J Thorac Cardiovasc Surg. 2002;123:110–118
  12. Lacour-Gayet FG, Clarke D, Jacobs JP, et al. The Aristotle Score for congenital heart surgery. Semin Thorac Cardiovasc Surg Pediatr Card Surg Annu. 2004;7:185–191
  13. Hickey E, McCrindle BW, Caldarone CA, et al. Making sense of congenital heart disease with a research database: the Congenital Heart Surgeons' Society Data Centre. Cardiol Young. 2008;18(suppl 2):152–162
  14. Karamlou T, McCrindle BW, Blackstone EH, et al. Lesion-specific outcomes on neonates undergoing congenital heart surgery are related predominantly to patient and management factors rather than institution or surgeon experience: a Congenital Heart Surgeons' Society study. J Thorac Cardiovasc Surg. 2010;139:569–577

PII: S1092-9126(10)00016-5

doi: 10.1053/j.pcsu.2010.02.007

Seminars in Thoracic and Cardiovascular Surgery: Pediatric Cardiac Surgery Annual
Volume 13, Issue 1 , Pages 66-70 , 2010

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